June 25th 2006. Nine years ago, I sustainable a life-altering deliberate elbow to the temple while playing in a water-polo tournament. I was 15. Little did I know how much that single event would change the course of my entire life. I wound up in a coma. I had to attend intensive rehab for cognitive, occupational, speech, and physical therapies. Among MANY things I lost my ability to read, memorize, and my cognitive functions tumbled drastically downhill. Those would become the least of my worries. Since this day 9 years ago I’ve been in pain 24/7. There has not been a single moment where I’ve been pain-free since the blow to my head. I’ve been to every specialist in the US and I’ve tried every drug to try and alleviate my symptoms from my Traumatic Brain Injury all to no avail. After about 3 years immediately following the injury I was tired of merely existing. I had 1 of 2 choices. I could commit suicide in hopes of getting away from pain, or I could battle every day to “fake it till you make it.” With unsuccessful attempts at my first option I began reclaiming my life in hopes of actually LIVING. It’s been the absolute hardest thing I’ve ever had to face. Every day is a struggle but the fight is more than worth it. Living with Traumatic Brain Injury is incredibly difficult. The invisibility of this injury makes it unique in the respect that its “survivors” appear normal on the outside. It’s both a blessing and a curse to look “normal.” Sometimes it would be 110% easier if my outsides reflected the battle that’s constantly raging internally. My injury forced me from a very early age to constantly adapt. Living moment by moment I live the life I am currently blessed with. The gift of planning is something most TBI-ers learn to live without. Our bodies dictate our current abilities and those change drastically day by day and hour by hour. I taught myself, with the tools given to me by UCLA’s Chronic Pediatric Pain Clinic, to appreciate the little things in life. To focus on the small beauties of this world because sometimes that’s all we have. Over the past 9 years I’ve gotten tremendously good at hiding my ailments in hopes of simulating a semi-normal life. Sometimes I cannot hide my symptoms and others look at me with the utmost concern. I spent the first 3 years after my injury 100% reliant on another individual. I needed help eating, bathing, walking, etc. When I first embraced the mentality of “fake it till you make it” I vowed to myself that as long as I was able, I would be self-reliant. Losing your independence is perhaps the worst thing to endure as a teenager. Once I was able to function independently I took it and ran. Many of my friends will speak of my absurd stubbornness, but there’s a reason for it. As much as I hate to admit, my entire life is ruled by my TBI. From seizures and double vision, vertigo and headaches that make you want to shoot yourself, from sharp stabbing pains throughout your body and getting sick at the drop of a hat I’ve learned to fully LIVE my life while I have the ability to. I never thought my life would be the beautiful adventure it is today, but I wouldn’t change a single thing. I’ve met some of the most incredible individuals and I truly value this precious gift we’ve been given. I try my absolute hardest to fully LIVE and be present in the moment. I appreciate the little gifts nature so freely spreads. I hope with all my heart to show others that they can accomplish their wildest dreams despite their disabilities or hiccups. The only constant is change and if these past 9 years have taught me anything it’s that love is the most important gift we all possess. Within ourselves lies the ability to change and focus on positivity. Sometimes it’s easier to see than others but hope and faith will carry you through the hardest of times. Live the life of your dreams, for nothing is ever guaranteed. The happiness of your life is directly related to the quality of your thoughts. Live with purpose and meaning… and don’t ever let ANYTHING hold you back from your dreams. I owe so much to the people in my life that have stayed by my side and help to make this crazy journey better than I ever could have imagined. I’ve accomplished more than I (or anyone else for that matter) ever thought was possible… and that’s a trend I’m going to uphold until the very end. Traumatic Brain Injury is a life-long battle. Raising awareness is key to helping others successfully maneuver their way through their new world. Stay positive and cherish every moment as if it were your last… and above all else don’t ever let others tell YOU what YOU ARE capable of. Defy the odds kids… it’s much more fun
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- @jonkinsella @BrainInjuryNJ my pleasure. Keep up the great work! Us TBIers wouldn't be here without you! #amelonaday all the way! 7 hours ago
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